Op-Ed: Time to Close State’s Residential Habilitation Centers

By Guest Writer • on February 9, 2010

by Andrea Kadlec, Director of Community Relations, Disability Rights Washington

As a single mother of two teenage daughters, both with disabilities, and someone with a journalism degree who has worked in the disability rights field for 10 years, I am continually disappointed by both media coverage and state leadership in regards to “saving” Washington State’s residential habilitation centers (RHC).

The Olympia Newswire’s piece, “Parents, elected officials seek ways to save residential care facility,” on February 2, cites compromised care and economic ruin associated with RHC closure or downsizing, concluding with a parent quote that touts, “The answer is keeping it like it is.”

The reality, however, is that Washington is behind the national curve of deinstitutionalization. Providing services in large institutional facilities, with high overhead costs and less tailored services is an outmoded service delivery model.  People with very complex medical needs and significantly-involved disabilities can be, and are, served in the community, and studies show these community-served individuals have a greater likelihood of adaptive behavior skills[i] and greater freedom and autonomy.[ii]

The RHC downsize opposition swell is generated by parents and guardians who have institutionalized family members or clients, and from unions and employees who are holding on to jobs.  This vocal group has done what it can to saturate the media; but its aim is problematic.

Research shows that parents who were often as a group initially opposed to deinstitutionalization were almost always satisfied with the results of the move to the community after it occurred.[iii] I have yet to meet a parent who wanted to place a child in an institution. This decision comes when one is at the end of his/her proverbial rope, when no known alternatives exist.  The myth that complex disability needs cannot be met in the community is perpetuated; but each time I have visited residential habilitation centers across the State, I’ve run into institutionalized individuals with disabilities less significant than those of my daughter, with a purported IQ of 23, who receives all of her services in the community.

Royale states closure of Rainier School, for the town of Buckley, “could find that a weak economic reality may usher in times of woe.” Our state has not yet discerned that it is a discriminatory business practice to balance economic policy on the backs of individuals with disabilities. Regardless, state-operated living assisted facilities (SOLAs) and other skilled and highly-varied job opportunities will foster a community with appropriate, flexible, community-based supports for those who move from institutional settings.  These jobs can and MUST be moved into the community.

It is true that there are initial costs associated with downsizing; but study after study shows that in the long run, savings are generated.  The Feasibility Study for the Closure of State Institutional Facilities, which Royale discusses, cites a savings of 47 million per state fiscal year after 2018 with responsible downsizing and consolidation of our residential habilitation centers.

These facilities will be closed eventually. It is inevitable.  Continued fear-based policy decisions, and posturing community services against institutional services serves no one in the end. Instead, we could all work together to realize a robust community service system that meets the very diverse needs of persons with complex disabilities via a highly skilled and engaged work force.  This would, for many individuals and their families, create an opportunity of autonomy and independent living previously unthought-of.

This is the side of the story that is continually untold, unheard, and glossed over by both reporters and policymakers statewide.  A fresh perspective, objective analysis and change, so our state can move forward, are long overdue.

[i] Kim, S., Larson, S.A., and Larkin, K.C. (1999). Behavioral outcomes of deinstitutionalization for people with intellectual disabilities: A review of studies conducted between 1980 and 1999. Policy Research Brief (University of Minnesota, Institute on Community Integration), 10(1).

[ii] Heller, T., Miller, A., Factor, A. (1999). Autonomy in residential facilities and community functioning of adults with mental retardation. Mental Retardation 37, 449-457

[iii]Kim, S., Larson, S.A., and Larkin, K.C. (1999). Behavioral outcomes of deinstitutionalization for people with intellectual disabilities: A review of studies conducted between 1980 and 1999. Policy Research Brief (University of Minnesota, Institute on Community Integration), 10(1).

Comments

By Janel Whittaker on February 9th, 2010 at 10:06 pm

we have watched this happen with interlake schools closure in medical lake wa, the clients who lived there suffered deeply from the closure, some of them were not strong enough and died.
This only hurts the people who live in these facilities. I work for Lakeland Village and was present for this closure, we did the best we could for these people and still had loss and heartache. The goverment really needs to think twice about doing this to the people who live in these places these are there homes were they are comfortable and safe! And the people who work in them do care deeply for the people they care for!!

By Deb Kapsner on February 10th, 2010 at 4:39 pm

As a parent of two typically-developed children and no real ties to advocacy groups on either side, I simply look at this as a human rights issue. I know the community-at-large has a perception that these institutions keep people “safe” and “comfortable”, but this is such an archaic view of how people with disabilities should be treated by our community. People with disabilities have the right to be cared for and included in their communities, not banished to institutions bound by high walls, barbed wire, limited rights, and alarmed doors. There is a better way and community services do exist to include all people in this community.

While I sympathize that employees at Buckley’s Rainer School would lose jobs if the so-called school closes, I feel that saving lives is more important that saving jobs. And if they are passionate about helping people with disabilities, the support staff who lose jobs will have many transferable skills to continue their work helping people with disabilities lead fulfilling, productive lives as part of the community.

By Sarajane Siegfriedt on February 11th, 2010 at 1:49 am

Thank you for publishing this piece. It is long overdue. Former State Sen. Al Deccio, whose daughter works at the Yakima Valley “School,” postponed its closure last year by raising a hue and cry about how it would hurt the community. Parents were enlisted to share their fears. Articles in the local paper decrying the proposed closure never contacted DSHS or parents of the 90% of people with disabilities living independently in the community. There are many people with developmental disabilities living with aging parents waiting years or decades for services, in part because of the disproportionate amount of state resources going into the five DD institutions. DSHS should be acknowledged for shrinking the population of the institutions from about 5,000 to about 900 currently. At least 10 other states have closed all of their DD institutions, proving that there is no one who can’t be cared for in the community.

It is a mystery to me why these institutions aren’t illegal. In 1999, the U.S. Supreme Court, in Olmstead vs. L.C., ordered the state of Georgia to provide supported living in the community in the most integrated setting possible. Experience in our state has proven that many of the worst “behavioral problems” disappear once the aggravating circumstances in the institution are replaced with choice of roommate, choice of diet or choice of recreational activities.

DSHS should close the five institutions as soon as feasible. Now is an especially advantageous time to purchase group homes or condos in the community, with help from the State Housing Finance Commission. All the funds saved by closing the institutions should be redirected toward keeping the state’s long-neglected promise to provide community-based services for the other 90% and their families. Many with aging parents can’t wait much longer.

By Shannon Carlson on February 12th, 2010 at 6:52 pm

Andrea, you said it all! Our challenge isn’t just in solely closing the institutions, but also in creating a shift in thinking. Human beings-people who experience disabilities-my friends, we’re all the same. There is no seperation from myself nor in the people I serve except for the fact that I have the benefit of freedom to choose the path of my own life. This is the right we need to provide all individuals. It’s time to let the wall come tumbling down.

By Maria Walsh on February 14th, 2010 at 12:43 am

Our son is 49 years old. At age two he was diagnosed as cerebral palsey, no other service was available, except Fircrest School RHC. We did not place him, we assisted in a parent cooperative (age 3) then Northwest Center for the Retarded-Pier 91(age 6) They could not serve him because of spontaneous emissus so he came home. Due to vomiting we could not place him and he could not maintain weight, almost died. At 9 he attended a daycare center we could not afford, but my parents paid for it. Then this morphed into a group home for children,at 16 he moved to the group home and we paid 1/2, parents the other. He attended public school, special education center and graduated at 21. Then he had to leave, at 23 he went to adult family home, lasted 3 months, provider did not want the daily upset of trainers. NO other home would accept him because he walks and he knows how to open doors. Fircrest accepted him on emergency entrance. He has been there for 25 years and we are deeply involved in his life and his care. No parent or guardian of residents of Fircrest hound or harass anyone in the community to give up their choice of home and come to the RHCs. Fircrest parents support community care for persons with developmental disabilities if their loved one benefits from the arrangements in the community. RHCs are a safety net for the community clients who break down, have explosive disorder, medication instability. Fircrest does not force anyone to stay if they choose not to. Residents of Fircrest enjoy a spacious campus, a family group living in a duplex or spacious areas in the skilled nursing facilities. Don’t believe me, visit fircrestfriends.org and take a tour. 206 361 3033